Lon Wilhelms looks off to the left side of the frame, lit in the warm orange glow of the sun, with the open water behind her.
Lon Wilhelms enjoys spending time outdoors, but since developing Alpha-gal syndrome, she's become much more cautious.
  • Lon Wilhelms got Alpha-gal syndrome from a lone star tick bite.
  • The syndrome made her allergic to mammals and their byproducts.
  • She starts her day with a specific coffee brand and only eats one meal a day — dinner. 

This as-told-to essay is based on a conversation with Lon Wilhelms, about her experience living with Alpha-gal syndrome. It has been edited for length and clarity.